THE SUMMARY

DIAGNOSIS

- First pathology report: PNET like qualities with parts resembling Glioblastoma Multiforme (GBM)

- Second opinion analysis: GBM

Surgery 

- Complete resection

Anti-cancer diet

- No sugar

- Low G.I.

- No processed food or additives

- Mainly whole food vegetarian diet 

- Increased intake of Omega-3

- High dose vitamin D

- High dose vitamin C

- Active probiotics

Standard  treatment  

- Radiotherapy

- Temodal

IMMUNE THERAPY

- Autologous DC vaccine

- Allogenic DC vaccine

- Newcastle Disease Virus (NDV)

-Multiferon (Inteferon)

-GcMAf

METRONOMIC TREATMENT

- Metformin

- Depalept

- Endoxan

- Sativex

 

 

 

diagnosis July 2013

Otherwise healthy male, 36yrs old, no previous symptoms, two days of splitting headache after sleeping/lying down. Brain tumor. PNET like qualities with parts resembling Glioblastoma Multiforme (GBM). Grade 4. Second opinion analysis confirming GBM.

surgery JULY/AUGUST 2013

Surgery, with complete resection - followed by bacterial infection in operation cavity, resulting in two more craniotomies. Analysis of removed tissue confirmed complete resection. Bacterial infection created a strong immune response in the operational cavity. Subsequently treated with IV meropenem prior to radiation.

'standard' treatment November 2013

6 weeks full dose radiotherapy and temozolomide 

THERAPY THROUGH LIFESTYLE AND DIET

De-stressing, taking naps and working regular hours. Jogging to radiotherapy.

Diet alterations based on reading from ANTICANCER and GERSON reconfirmed in further reading in published articles on PUBMED (published medical articles)

Detox with a 3month raw vegan diet, no salt, no sugar, no processed food. Reading all food labels thoroughly! Sticking to a wholefood, GI diet - low blood sugar - avoiding chemicals, heavy metals and chlorine (filtered water), avoiding processed food and all unnatural additives. Mainly eating an organicvegetable based diet. Meat 2-3 times a week, but only organic grass-fed beef or game or wild fish, no processed meats, no pork or chicken. Eating lots of green and colourful vegetables, cruciferous vegetables, kale, spinach, garlic, ginger, curcumin, green tea and all other immune boosting, cancer fighting and highly nutritious foods. DIET EXPLAINED

'Novel' immune therapy December 2013

Allogeneic dendritic cell (DC) vaccine 

Autologous vaccine + IL-2 activation

NDV (only 5 doses)

'Metronomic' treatment December 2013

METFORMIN - Approved for treatment of diabetes. Lowers blood sugar level.

DEPALEPTValproic Acid - Approved for treatment of epilepsy. Depalept Acid is also a histone deacetylase inhibitor and is under investigation for treatment of HIV and various cancers.

ENDOXAN, Cyclophosphamide - Endoxan is a cytotoxic agent. It works by killing rapidly dividing cells, which make it particularly useful in the treatment of certain cancers and disorders of the immune system. 

VALCYTEValganciclovir also known as Cymeval, Valcyt, Valixa, Darilin, Rovalcyte, Patheon, and Syntex, is an antiviral medication used to treat cytomegalovirus (CMV) infections. It has been shown that there is a very high incidence of CMV infection in glioblastoma.

 

Continued immune therapy January 2014

INTERFERON (MULTIFERON) - 3M units 3times/week continually - Interferon was a trending immune-therapy for cancers in the 70's and 80's, but due to unreliable results and not being able to understand the mechanisms behind why it sometimes worked and sometimes didn't, research has now changed focus to other alternatives. Human derived interferon was the treatment my uncle (previously mentioned) received for 14years - needless to say, it became a compulsory part of our treatment plan.

March 2014

GcMaf  (Gc Protein derived Macrophage Activating Factor) - 0,5ml 2times/week - GcMaf Is a treatment developed for cancer, HIV and immune system diseases. VERY IMPORTANT NOTE: No proper clinical studies have been performed to confirm this claim and there are flaws in the publications.

November 2014

SATIVEX - there is strong evidence to suggest that cannabinoids, the active components in cannabis have anti tumour effects. There are several published articles proving anti-tumour activity in vitro tests and in murine tests. There are numerous personal accounts both published on YouTube and in daily newspapers of the positive effects of using cannabis oil as a cancer treatment. Armed with evidence that an extraction of cannabis oil caused cell death in vitro on our own tumour cells and had a better efficacy than the standard chemotherapy option - this would be a definite part of the treatment strategy. Highly controversial, due to its illegal status - our choice was to use Sativex, a FDA approved infusion from the cannabis plant, produced in a laboratory with controlled proportions of active cannabinoids and instructions for dosage.